Monday, November 1, 2010

Muse(ings)

After my diagnosis of somatization, I had one really bad day where turning my head made me dizzy and I felt like I was going to throw up. Of course that much of that was due to crying hysterically the night before (no pun intended). My best friend's words echoed through my head... "You need to sleep less hours a night... Everyone gets in funks... You need a boyfriend..." and I felt myself feeling guilty for being too ill to to anything but with not enough strength to change it. The next day, everything changed.

I woke up just after noon instead of around 5 o'clock, while still maintaining my regular 12 hours I needed by going to bed earlier. I subsequently got to enjoy the sun pouring into the house as I went about my day. I opened my blinds, and I listened to music on my ipod as I cleaned, something that I had stopped doing because the times I can deal with the musical stimulation are so rare. I jumped up and down at Muse's most electric moments, and aside from my birthday where I did the same with each peg knocked down by my bowling ball, jumping is something I had ceased to be able to do for the past few months.

This change was not because I'd willed myself to be better. It was because I had recognized those better moments and made them the best they could be. As my uncle advised me last night, my symptoms are real, they aren't out of laziness, and I do have a medical condition, but all I can do is keep pushing myself within reasonable limits and not party too hard so I don't crash too hard. And in that way my condition is better than it used to be. These days, if I want to be well for something I just make sure that I have nothing scheduled for the few days beforehand so that my stimulation receptors (or whatever the medical term may be) can cool and recharge.

Tonight I went out for Halloween -- my last big event outside the house for the next couple of months as I try to spend more frequent and less intense moments out in the world. I danced, I drank, I talked and laughed, and had a merry good time. I also returned to the dating world -- or at least the "physical" world -- without even trying. A guy reached for my hand as we walked along, squeezing it affectionately, and I squeezed back. We stood side by side, shoulders touching, and caste flirtatious glances at one another. Sure, he was drunk and will probably remember none of this tomorrow, and I agreed to take his hand only because he was part of our group and I was afraid he would fall over otherwise, but it reignited something in me, reminding me of the intimacy I'm missing. I'm unsubscribing from the disabled dating sites. If I fall in love with a disabled man, great, but I'm going to start seeing me when I look in the mirror again, not the disorder that has been threatening my identity. It's real, but it doesn't define me any more than my race, sex, or shoe size. As Muse says, "It's a new dawn, it's a new day, it's a new life / for me / and I'm feeling good."

2 comments:

  1. Yey! I am glad you are taking this reaction of somatazation okay now- knowing that it isn't the cause just the reaction. And that you know what was said by so called friend was meant but he didn't mean what he said ;p. I am also glad to hear you say thay you realize you are more then the disorder that you have- that you are a wonderfuly complex person who just happens to have a disorder. Hang in there I know it is taking longer then you or anyone wanted to find out the cause of your disorder- but I do believe that eventually one will be found!

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  2. You go girl! Take life by the horns!

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